Sick and disabled children helplines

Use our helplines to find out more information and advice on sick and disabled children

Gov UK – Help for a disabled child

Help for a disabled child

NHS Choices – Caring for a disabled child

Caring for a disabled child

Wellchild

Tel: 01242 530007

wellchild.org.uk

WellChild is the national charity for sick children. We help sick children and their families throughout the UK as they deal with the consequences of serious illness and complex conditions. Our mission is to reach as many children and young people as we can, year after year. We focus on three key areas - care, support and research - and our involvement in so many aspects of children's health puts us in a unique position.

Contact a Family

Helpline: 0808 808 3555

cafamily.org.uk

Providing advice, information and support to the parents of all disabled children, no matter what their disability or health condition.

Together for Short Lives

Helpline: 0808 8088 100

togetherforshortlives.org.uk

Together for Short Lives is the leading UK charity for all children with life-threatening and life-limiting conditions and all those who support, love and care for them. We support families, professionals and services, including children’s hospices. Our work helps to ensure that children can get the best possible care, wherever and whenever they need it.

Action for Sick Children

Helpline: Freephone 0800 074 4519

actionforsickchildren.org

UK’s leading children’s healthcare charity, specially formed to see that children receive the highest standards of healthcare possible

The Sick Children’s Trust

Tel: 020 7638 4066

sickchildrenstrust.org

The Sick Children’s Trust believes that no child should be separated from their family while in hospital receiving treatment for serious illness. Our mission is to provide high quality home from home accommodation for families whose children are receiving hospital treatment for serious illness.

The Family Fund

familyfund.org.uk

The Family Fund provides grants to families with severely disabled children, based on families' views and needs and is open to families with children and young people up to their 18th birthday who have a severe disability.

The Children’s Trust

Telephone: 01737 365 000

thechildrenstrust.org.uk

The Children’s Trust is the UK’s leading charity for children with brain injury. Every year we help thousands of children and families right across the country through rehabilitation, education, care and support.

Our Brain Injury Hub website provides information and advice to parents of children with acquired brain injury: www.braininjuryhub.co.uk.

Parents of Disabled Children

parentsofdisabledchildren.co.uk

Families who have children and young people with special needs very often deal with similar life styles. We have all had concerns ranging from education, access to services, respite and other issues directly related to their children's special needs. Parents of disabled children bring families together for friendship, to share information and to support one another. The forum was created by parents who have children with special needs and is run by parents so we are all in this together. With us you will realise you are not alone.

Scope / Dial

Helpline: 0808 800 33 33

scope.org.uk/dial

Young disabled people

We're all about changing society for the better, so that disabled people and their families can have the same opportunities as everyone else. We work with disabled people and their families. We offer practical support – from information services to education and everyday care. We challenge assumptions about disability, we influence decision makers and we show what can be possible.

Everything we do is about creating real and lasting positive change in individual lives and in the world around us. We believe that together we can create a better society.

Alice’s Escapes

alices-escapes.co.uk

Alice’s Escapes is a charity run by a team of volunteers committed to providing free holidays for families with a seriously ill child. The idea for Alice’s Escapes came after Alice and her family spent a week being looked after by the Torbay Holiday Helper’s Network (THHN), based in Devon. All accommodation, food, outings and activities were given with the compliments of local businesses. After many years of gruelling treatments, Alice and her family were able to step back and experience ‘normal’ family life. We aim to give this opportunity to all such families to ‘escape’ and enjoy some peace and relaxation in the beautiful Lake District.

Unique – The Rare Chromosome Disorder Support Group

rarechromo.co.uk

Our mission is to inform, support and alleviate the isolation of anyone affected by a rare chromosome disorder and to raise public awareness. To act as an international group, supporting, informing and networking with anyone affected by a rare chromosome disorders and with any interested professionals

To link families whose children have similar chromosome disorders, clinical and/or practical problems

To set up local groups, both physical and virtual, throughout the world for families affected by any rare chromosome disorders so that they can give support and encouragement to each other and To develop a series of family-friendly information guides on specific rare chromosome disorders as well as practical guides on aspects of daily living.

SIBS - For brothers and sisters of disabled children and adults

sibs.org.uk

Sibs exists to support people who grow up with or have grown up with a disabled brother or sister. It is the only UK charity representing the needs of over half a million young siblings and over one and a half million adult siblings.

More information and advice on our helplines pages