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Usher syndrome helplines

Usher syndrome


Helpline:  0300 330 9256


Usher Syndrome

We believe everyone should be able to take part in life, no matter their disability.  We offer free and impartial information about living with complex disabilities, including deafblindness. Our work helps thousands of people who are deafblind or who have complex disabilities to communicate, experience the world and fulfil their potential.  


Helpline:  0808 800 33 33


Usher Syndrome Community boards

We're all about changing society for the better, so that disabled people and their families can have the same opportunities as everyone else.  We work with disabled people and their families. We offer practical support – from information services to education and everyday care.  We challenge assumptions about disability, we influence decision makers and we show what can be possible.  Everything we do is about creating real and lasting positive change in individual lives and in the world around us. We believe that together we can create a better society.


Helpline:  0808 808 3555


Usher Syndrome

Providing advice, information and support to the parents of all disabled children - no matter what their disability or health condition.

Cure Usher


We are a patient-led, UK-based, registered charity dedicated to supporting people living with Usher syndrome.

Our mission is simple, to raise awareness of Usher syndrome and fund research to help find a cure. People with Usher syndrome experience combined hearing and sight loss. It’s a rare genetic condition that affects everyone differently. But Usher syndrome doesn’t define us.

SIBS – For brothers and sisters of disabled children and adults


Sibs exists to support people who grow up with or have grown up with a disabled brother or sister. It is the only UK charity representing the needs of over half a million young siblings and over one and a half million adult siblings.

The Family Fund

Tel: 01904 550055


The Family Fund provides grants to families with severely disabled children, based on families' views and needs and is open to families with children and young people up to their 18th birthday who have a severe disability. 

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Weekdays 10am-12:30pm