A couple from Carlisle say they are 'seriously considering' moving to Scotland for a 'life-changing' drug that could prolong his daughter's life.
Ayda Louden was diagnosed with cystic fibrosis shortly after she was born. It's a condition that damages the lungs and drastically reduces life expectancy.
They hope the treatment, which is not available on the NHS in England, can give her a better quality of life.
It's said to improve lung health and costs around £100,000 per person, per year, and has to be taken for life.
If the family lived just eleven miles away in Gretna, Ayda could get treatment for free.
Number of people in the UK affected by cystic fibrosis.
Why are negotiations still ongoing?
A deal to make the treatment available for NHS patients in England, Wales and Northern Ireland has not been reached, despite it being licensed for more than three years.
NHS England has put forward a very generous offer, the largest in its 70-year history, that would make Orkambi available to NHS patients in England and we urge Vertex to accept the deal so patients can benefit from treatment as soon as possible."
Cystic fibrosis causes the production of abnormally thick mucus, which often results in serious lung damage. Around half of the people living with disease survive past the age 40.