After years of tirelessly campaigning, a mother from Portsmouth has finally been able to see her 6-year-old daughter take the 'life-changing' drug Orkambi.
It can cause breathing problems and increase the risk of lung infections.
I'm so happy. I'm relieved as well really because it's like extended life in our hands and a healthier future, so it's really promising and like hope in the form of a pill. Now that Ivy has had that medicine, there will be things going on in her body and the cells inside will be starting to change and that's magic. It's incredible medicine it really is. So clever."
patients will receive Orkambi on the NHS
A deal was finally struck between US drug company Vertex and the NHS to supply the drug for children over two years old.
Gemma hopes it will transform Ivy's life.
Orkambi helps around half of cystic fibrosis sufferers, but new drugs are being developed that could help even more.