A mother from Sittingbourne is calling on the Government to use exceptional powers to give her access to a drug, which she hopes could extend her life enough to see her young son grow up.
Karly Pleasant, who has cystic fibrosis, is one of those battling for access to the drug Orkambi on the NHS. But the drug company Vertex is disputing the price on offer. Some campaigners are now calling on the government to allow OTHER companies to make the drug.
Vertex says that would undermine its ability to pay for future research. Reporter Sarah Saunders spoke to CF patient Carlie Pleasant and Nick Medurst from the Cystic Fibrosis Trust.